唐氏综合征的个人和环境因素和家庭帮助:横截面研究
Beatriz Helena Brugnaro1, Camila R G Lima1, Isabelle G R DA Costa1
1Universidade Federal de São Carlos/UFSCar, Departamento de Fisioterapia, Laboratório de Análise do Desenvolvimento Infantil (LADI), Rodovia Washington Luís, s/n, Monjolinho, 13565-905 São Carlos, SP, Brazil.
Anais da Academia Brasileira de Ciencias
|September 11, 2024
概括
在患有唐氏综合征 (DS) 的儿童中,只有性别与家庭作业的独立性有关. 患有DS的女儿需要更少的帮助,强调需要鼓励所有孩子的独立性.
科学领域:
- 儿童发展 儿童发展
- 关于残疾人的研究.
- 职业疗法 职业疗法 职业疗法
背景情况:
- 生物心理社会框架表明,个人和环境因素影响了功能.
- 对于这些因素如何影响唐氏综合征 (DS) 的儿童和青少年在家务中的独立性,人们的理解有限.
研究的目的:
- 探索个人/环境因素与巴西DS儿童/青少年在家务中的独立性之间的关联.
- 为了确定特定的因素,调解或作为障碍/促进在这个人口的功能.
主要方法:
- 使用儿童家庭活动和责任评估量表 (CHORES) 和标准化问卷.
- 采访了28名患有DS的儿童/青少年的照顾者,对个人 (年龄,性别) 和环境 (社会经济地位,母亲教育) 因素进行了采访.
- 采用多重线性回归分析来确定因子和独立度之间的关系.
主要成果:
- 女性性别与在自我照顾和整体家庭作业方面更高的独立性有显著的关联 (分别解释了21.8%和15.8%的差异).
- 对于"家庭照顾"的结果,没有发现任何显著的关联.
- 患有DS的女儿表现出对家务援助的需求减少.
结论:
- 个人因素,特别是女性性别,是DS儿童在家务中独立的唯一重要预测因素.
- 医疗保健提供者和家庭应该促进所有患有DS的儿童的家务独立,无论性别如何.
- 鼓励参与并为患有DS的男孩和女孩提供机会对于培养独立性至关重要.
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