关于以患者为中心的亚托匹性皮肤炎爆发的定义的共识
Aaron M Drucker1,2, Isabelle J C Thibau3, Bryan Mantell3
1Division of Dermatology, Department of Medicine, University of Toronto, Ontario, Canada.
JAMA dermatology
|September 11, 2024
概括
患有阿托皮性皮炎 (AD) 的患者在AD爆发的定义上达成共识. 这种以患者为中心的理解可以改善AD爆发管理的研究和临床护理.
科学领域:
- 皮肤病学 皮肤病学
- 患者报告的结果
- 临床研究方法论 临床研究方法论
背景情况:
- 关于阿托皮性皮肤炎 (AD) 爆发的定义缺乏共识,阻碍了有效的管理和研究.
- 爆发管理是阿尔茨海默病护理的关键未满足需求.
- 清晰的定义对于评估治疗有效性和共享决策至关重要.
研究的目的:
- 建立一个以患者为中心,基于共识的AD爆发的工作定义.
- 从患者的角度识别AD爆发的关键属性.
主要方法:
- 采用了经过修改的eDelphi方法,包括建立共识的焦点小组和在线调查.
- 参与者包括通过方便抽样招募的美国AD成年人.
- 共识是由声明重要性的特定评级值来定义的.
主要成果:
- 在631名调查参与者中,15个陈述中的12个达到了共识.
- 超过一半的参与者觉得与他们的医疗保健从业者在爆发定义上保持一致.
- 大多数人认为以患者为中心的定义对沟通有用.
结论:
- 这项研究在患者定义的AD爆发的含义上达成了共识.
- 开发的定义可以通过结合患者的观点来增强研究和临床实践.
- 解决这种以患者为中心的方面对于评估AD治疗疗效至关重要.
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