发展中国家状细胞病患者的自我管理需求,策略和支持:范围审查
Andrews Adjei Druye1, Mustapha Amoadu2, Christian Makafui Boso1
1Adult Health Department, School of Nursing and Midwifery, University of Cape Coast, Cape Coast, Ghana.
BMJ open
|September 11, 2024
概括
状细胞疾病 (SCD) 患者有不同的自我管理需求,包括知识和情绪支持. 量身定制的干预措施可以改善自我照顾,知识和幸福感,强调需要多学科支持.
科学领域:
- 血液学 血液学 血液学
- 公共卫生 公共卫生
- 患者护理 患者护理
背景情况:
- 状细胞病 (SCD) 构成一个重大的全球卫生挑战,不成比例地影响资源有限的地区.
- 关于SCD自我管理的现有研究主要由初级研究组成.
研究的目的:
- 系统地识别和绘制SCD个体的自我管理需求.
- 记录SCD患者使用的自我管理策略.
- 列出SCD自我管理的现有支持干预措施.
主要方法:
- 使用了一个范围审查框架 (Askey和O'Malley).
- 在主要数据库 (PubMed,Scopus,Embase,Dimensions AI) 进行了全面的搜索,截至2024年6月.
- 综合了来自14项研究的数据,以确定需求,战略和干预措施.
主要成果:
- 确定的需求包括知识差距,情绪困扰,身体限制和医疗保健准入障碍.
- 报告的策略包括营养管理,心理应对和积极的健康管理.
- 主要由医疗保健专业人员进行的干预,重点是教育,技能培训和支持,从而提高自我效能,知识,自我护理和福祉.
结论:
- 通过量身定制的干预措施来解决多样化的SCD自我管理需求,对于提高患者福祉和疾病管理至关重要.
- 建议医疗保健专业人员采取综合医疗,情感和社会护理的多学科干预措施.
- 未来的研究应该通过纵向研究来调查自我管理干预措施的长期有效性.
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