患者和卫生专业人员对与炎症性肠道疾病相关的慢性疼痛的研究重点:联合制作的顺序混合方法德尔菲共识研究研究
Morris Gordon1,2, Vassiliki Sinopoulou3, Roxana Mardare4
1University of Central Lancashire, Preston, UK MGordon@uclan.ac.uk.
BMJ open gastroenterology
|September 12, 2024
概括
患者和医疗保健专业人员优先考虑低FODMAP饮食和心理治疗,以控制炎症性肠病 (IBD) 中的慢性疼痛. 这些发现指导了IBD治疗的未来研究和资金决策.
科学领域:
- 胃肠病学和肝病学
- 疼痛管理 疼痛管理
- 以患者为中心的护理
背景情况:
- 慢性疼痛对患有炎症性肠病 (IBD) 的人的生活质量产生重大影响.
- 现有的IBD疼痛随机对照试验干预措施的证据确定性低至非常低.
- 需要就IBD疼痛管理中的治疗优先事项和结果达成共识.
研究的目的:
- 为了实现患者和专业人士共同制作的Delphi共识,就IBD慢性疼痛的治疗优先事项达成共识.
- 确定IBD疼痛管理干预措施的关键结果措施.
- 提出一种理解IBD疼痛研究成果的模型.
主要方法:
- 与英国克罗恩氏和结肠炎联合制作的一项两阶段在线调查分发给患者和医疗保健专业人员.
- 第三阶段涉及四个在线小组采访,讨论优先治疗和结果背后的逻辑.
- 综合调查和采访数据的定性分析是使用三阶段技术进行的.
主要成果:
- 饮食是患者 (36.1%) 和医疗保健专业人员 (56.9%) 参与者的首要任务.
- 确定的前三大共识优先事项是低FODMAP饮食,压力管理治疗和放松疗法.
- 采访的主要主题包括患者的个性,信仰,疾病活动的影响,可访问性障碍和生活质量.
结论:
- 低FODMAP饮食和心理疗法成为患者和医疗保健专业人员的最高评级研究优先事项.
- 这些发现,以及拟议的模型,应该在决定IBD疼痛研究时为资助机构和研究人员提供信息.
- 以患者为中心的优先事项对于推进IBD慢性疼痛的有效管理策略至关重要.
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