一个以患者为中心的AYA癌症幸存者护理概念模型,由定性采访研究提供信息
Marlaine S Figueroa Gray1, Lily Shapiro1, Caitlin N Dorsey1
1Kaiser Permanente Washington Health Research Institute, 1730 Minor Avenue Suite 1600, Seattle, WA 98101, USA.
Cancers
|September 14, 2024
概括
患有癌症的青少年和年轻人 (AYA) 需要以患者为中心的生存照顾模式. 关键需求包括协调护理,心理健康支持,同行联系,以及解决生育和财务问题.
科学领域:
- 在瘤学瘤学.
- 青少年和年轻人的医学
- 医疗保健服务研究 医疗服务研究
背景情况:
- 概念模型指导癌症幸存者护理和研究.
- 现有的模型往往没有解决青少年和年轻人的独特需求 (AYA).
研究的目的:
- 为青少年和年轻成年人 (AYA) 癌症幸存者护理开发一个以患者为中心的概念模型.
- 确定影响AYA癌症存活率的关键因素.
主要方法:
- 对现有护理模式进行了叙事文献审查.
- 对25名AYA癌症幸存者的半结构面试进行了主题分析.
- 根据年龄和诊断后的时间分层招募.
主要成果:
- 确定了AYA生存的关键主题:护理协调,心理健康支持,同行联系,生育保护支持,财务负担援助,生活质量支持和副作用管理.
- 强调需要关注年轻人的独特发展和心理社会需求.
结论:
- 一个以患者为中心的概念模型 AYA 癌症幸存者护理已经开发出来.
- 这个模型可以为未来的研究和临床实践提供信息,以改善对AYA癌症幸存者的护理.
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