全球卫生研究数据共享政策:跨部门元研究研究
Aidan C Tan1, Angela C Webster1, Sol Libesman1
1NHMRC Clinical Trials Centre, University of Sydney, Sydney, New South Wales, Australia.
Research synthesis methods
|September 14, 2024
概括
卫生研究数据共享政策不足,实施指南有限. 公共资助者和道德委员会有关键的机会来改善数据共享率和实践.
科学领域:
- 卫生研究 卫生研究 卫生研究
- 数据科学数据科学数据科学
- 政策分析 政策分析
背景情况:
- 低数据共享率阻碍了研究价值,综合和完整性.
- 在所有研究阶段都需要可操作的数据共享政策.
- 在整个健康研究生命周期中,数据共享政策的流行病学需要有系统的描述.
研究的目的:
- 系统地描述数据共享政策的流行病学.
- 评估数据共享政策的特点和强度.
- 确定改善数据共享实施的机会.
主要方法:
- 从资助者,道德委员会,试验注册表,期刊和数据存储库对政策的横截面分析.
- 审查到2022年5月的官方网站,报告和记录.
- 政策的描述性分析,包括数据共享意向声明和COVID-19数据共享.
主要成果:
- 41%的资助者,19%的期刊和6%的数据存储库要求共享数据;没有伦理委员会或试验注册表这样做.
- 私人和慈善资助者比公共资助者更有可能要求共享数据.
- 数据共享要求不足,实施指南有限.
结论:
- 在整个健康研究中,数据共享要求和建议是不充分的.
- 对于在需要或建议的情况下实施数据共享,存在有限的指导方针.
- 公共资助者和道德委员会为增强数据共享提供了大量尚未开发的机会.
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