参与EuMAR利益相关者:对欧盟国家医疗辅助生殖 (MAR) 数据收集实践的分析†
Elena Achótegui Sebastián1, Carlos Calhaz-Jorge2, Christian De Geyter3
1ESHRE, Central Office, Strombeek-Bever, Belgium.
Human reproduction (Oxford, England)
|September 14, 2024
概括
欧盟成员国对医疗辅助生殖 (MAR) 数据的收集有所不同. 欧洲医疗辅助生殖监测 (EuMAR) 项目提供了一个标准化数据和改善结果的机会.
科学领域:
- 生殖医学 生殖医学
- 公共卫生 公共卫生
- 医疗信息学 医疗信息学
背景情况:
- 医疗辅助生殖 (MAR) 数据收集系统在欧盟成员国之间存在很大差异.
- 现有系统对长期和跨境的后续行动提出了挑战.
- 为了准确的累积结果计算,需要一个统一的注册表.
研究的目的:
- 评估欧盟成员国当前的国家MAR数据收集系统.
- 探索各国如何为欧洲医疗辅助生殖监测 (EuMAR) 项目做出贡献.
- 确定数据标准化和改善MAR数据收集的机会.
主要方法:
- 一项在2023年进行的横截面研究.
- 调查和采访来自26个欧盟成员国的利益相关者.
- 涉及的国家主管机关和专业协会.
主要成果:
- 一半的参与国有国家MAR注册表,其中包含循环数据;其他国家有综合数据或没有注册表.
- 数据收集方法,类型和报告要求有很大的不同.
- 利益相关者预计EuMAR将带来好处,包括改善统计数据和累计结果计算.
结论:
- 在整个欧盟的MAR数据收集中存在显著的异质性.
- 欧玛项目为加强数据标准化和可比性提供了宝贵的机会.
- 成功实施EuMAR可以带来更好的患者信息,医疗保健提供和政策制定.
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