患者积极参与瘤学研究
Ursula Ganz-Blaettler1, Sarah Jayne Liptrott2, Angela Tolotti2
1SAKK Patient Advisory Board, Effingerstrasse 33, 3008 Bern, Switzerland.
Cancer treatment reviews
|September 14, 2024
概括
患者和公众参与 (PPI) 在瘤学研究显示出巨大的潜力,尽管存在挑战. 加强PPI在药物开发中的整合需要解决资源限制和改进报告方法.
科学领域:
- 在瘤学瘤学.
- 医疗保健服务研究 医疗服务研究
- 患者参与 患者参与
背景情况:
- 患者与公众参与 (PPI) 在健康研究中越来越受认可.
- 瘤学研究为PPI提供了独特的机会和挑战.
- 瑞士临床癌症研究集团 (SAKK) 患者咨询委员会的10年经验提供了实用的见解.
研究的目的:
- 在全球范围内审查PPI在瘤学研究中的现状.
- 识别癌症研究中PPI实施的促进者和障碍者.
- 突出需要改进PPI的报告和评估.
主要方法:
- 在瘤学研究中对PPI的文献综述.
- 对SAKK患者咨询委员会活动的案例研究分析.
- 综合监管方面,临床活动,成就和困难.
主要成果:
- 由于精密医学和利益相关方的兴趣,PPI在瘤学中具有显著的潜力.
- 促进者包括患者组织和监管支持.
- 障碍包括缺乏资源,培训和合作.
结论:
- 在瘤药物开发中整合PPI是有希望的,但面临着障碍.
- 需要改进PPI影响的报告和评估方法.
- 加强利益相关者之间的合作对于推动PPI至关重要.
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