慢性病患者对患者组织的支持服务和活动的看法
Avi Zigdon1, Eyal Eckhaus2, Michal Rosenfeld3,4
1Department of Health Systems Management, School of Health Sciences, Ariel University, Science Park, P.O.B. 3, Ariel, 40700, Israel. aviz@ariel.ac.il.
Israel journal of health policy research
|September 16, 2024
概括
患者组织为慢性病患者提供重要支持. 这项研究确定了12项关键服务,包括人际支持,患者权利和医疗信息,这些服务对患者福祉和医疗保健整合至关重要.
科学领域:
- 医疗保健系统研究 医疗保健系统研究
- 患者倡导 患者倡导
- 医疗保健服务研究 医疗服务研究
背景情况:
- 患者组织 (PO) 对于支持慢性病患者至关重要.
- 患者参与改善了护理,简化了提供者的工作,塑造了政策,并影响了医疗保健结构.
- 患者对PO服务的看法仍然未被充分探索.
研究的目的:
- 从慢性病患者的角度识别和绘制PO服务和活动.
- 将这些以患者为中心的服务纳入医疗保健系统.
主要方法:
- 从以色列生产企业和文献中抽取了19个服务/活动.
- 以患者为导向的问卷 (POQ) 用雪球采样分发给1395名慢性病患者.
- 使用了探索性和确认性因子分析 (EFA,CFA).
主要成果:
- 确定了12项符合慢性病患者需求的服务/活动.
- 这些被分为:人际支持 (5项),患者权利 (4项) 和医疗信息 (3项).
- 验证因子分析 (CFA) 显示出一个很好的模型匹配 (CFI=0.98,NFI=0.97,TLI=0.96,RMSEA=0.058).
结论:
- 组织良好的POs是改革医疗保健系统的组成部分,充当社会部门和中介机构.
- 确定了12个关键服务,可以为临床实践,卫生政策,患者护理人员关系,研究和成本管理提供信息.
- 为了有效的整合,建议正式承认POs和国家患者委员会.
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