对患有亚形性皮肤炎儿童的母亲进行定性研究:情绪和社会影响
Mariana Muzzolon1, Nathaly Lamas Garcez1, Renata R Imoto1
1Federal University of Paraná, Postgraduate program in child and adolescent health, Clinical Hospital Complex of the Federal University of Paraná, 80060-900, General Carneiro, 181, Curitiba, Paraná, Brazil.
La Tunisie medicale
|September 17, 2024
概括
母亲在照顾患有无皮炎 (AD) 的孩子时会面临重大的情感和社会挑战. 早期的支持和心理护理对于管理这种慢性皮肤疾病的母亲来说至关重要.
科学领域:
- 儿科皮肤病学 儿科皮肤病学
- 心理社会健康 心理健康
- 护理人员研究 护理人员研究
背景情况:
- 亚托皮肤炎 (AD) 是一种普遍存在的儿童皮肤疾病,影响家庭生活质量.
- 关于阿尔茨海默病对护理人员,特别是母亲的社会和情感影响的研究有限.
- 了解这些影响对于全面的患者和家庭护理至关重要.
研究的目的:
- 调查童年无皮炎对母亲的情感和社会影响.
- 确定母亲在管理孩子的AD时所面临的挑战.
主要方法:
- 使用半结构面试进行的定性研究,对23名被诊断患有AD的儿童的母亲进行了半结构面试.
- 采访数据的内容分析使用劳伦斯·巴丁的技术.
- 使用SCORAD指数评估AD的严重程度.
主要成果:
- 82.6%的母亲在诊断时报告了最初的冲突.
- 43.5%的母亲是唯一负责治疗的.
- 56.6%的人将AD描述为痛苦的源泉,而21.7%的人将其视为学习经验.
结论:
- 儿童无皮炎给母亲带来了重大的心理和社会负担.
- 母亲需要进行心理支持查,以提高长期治疗的坚持.
- 针对母亲福祉的综合护理方法对于管理儿童阿兹海默症至关重要.
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