基因组研究联盟的数据访问安排
Dianne Nicol1, Jane Nielsen2, Madeleine Archer3
1Centre for Law and Genetics, University of Tasmania, Hobart, TAS, Australia. Dianne.nicol@utas.edu.au.
Scientific reports
|September 17, 2024
概括
基因组研究联盟在数据共享中使用不同的语言. 这项研究发现了12种不同的访问安排,其中大多数使用分层访问,突出了在基因组数据共享中需要更清晰的术语.
科学领域:
- 基因组学就是基因组学.
- 生物信息学是一种生物信息学.
- 数据科学数据科学数据科学
背景情况:
- 基因组研究联盟是分享有价值的研究数据的关键.
- 目前用于描述数据共享安排的术语缺乏标准化.
- 呼吁在基因组数据共享政策中使用更统一的语言.
研究的目的:
- 审查基因组研究联盟用来描述数据访问的语言的多样性.
- 分析这些联盟使用的数据访问安排类型.
主要方法:
- 基因组研究联盟出版物的文献综述.
- 来自98个基因组研究联盟的公开数据的分析.
主要成果:
- 随着时间的推移,确定了术语和访问安排的广泛多样性.
- 列出了12种不同的访问安排,包括简单的 (开放式,联盟式,管理式,注册式) 和复杂的分层形式.
- 观察到大多数联盟使用分层访问,通常受资助方政策的影响 (例如,NIH,Wellcome Trust).
结论:
- 基因组研究联盟如何描述他们的数据访问存在显著差异.
- 在数据共享语言中提高一致性,清晰度和透明度将使所有利益相关者受益.
- 需要进一步努力,以标准化术语,并提高对基因组数据访问安排的理解.
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