为患有癌症的儿童及其家属设计基于性的干预计划:研究协议
Chantale Simard1,2,3, Véronique Roberge1,2,3, Maxime St-Pierre1
1Département des sciences de la santé, Université du Québec à Chicoutimi (UQAC), Saguenay, QC, Canada.
Frontiers in psychology
|September 19, 2024
概括
这项研究介绍了一项基于家庭性的干预计划,以改善加拿大偏远社区癌症儿童及其家属的福祉. 它为家庭提供自我管理工具和专业支持,增强治疗和生存期间的护理.
科学领域:
- 儿科瘤学 儿科瘤学
- 医疗保健服务研究 医疗服务研究
- 家庭心理学 家庭心理学
背景情况:
- 儿童癌症的生存率有所提高,但长期的副作用带来了挑战.
- 加拿大偏远社区的儿童无法获得专门的瘤资源.
- 这项研究解决了在服务不足的地区需要可访问,以家庭为中心的护理的需求.
研究的目的:
- 为儿科瘤患者和家属推出一个跨学科的临床干预计划.
- 改善癌症轨迹的福祉,专注于偏远社区.
- 通过加强支持和自我管理策略,赋予家庭权力.
主要方法:
- 采用干预映射方法,从患者,家庭,专业人员和研究人员的协作投入.
- 确定了漏洞因素,并开发了程序更改的逻辑模型.
- 采用混合方法的方法来评估计划的有效性,将策略定制为远程环境.
主要成果:
- 预期的结果包括通过自我管理工具和专业支持赋予家庭权力.
- 该计划旨在缓解生物心理社会和精神方面的并发症.
- 在治疗和生存阶段预计会改善整体健康和福祉.
结论:
- 这个倡议将儿科瘤护理转变为为偏远社区的整体,以家庭为中心的方法.
- 可访问的干预措施对于应对服务不足人群的直接和长期挑战至关重要.
- 该计划强调弹性,专业支持和家庭赋权,以提高护理标准.
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