"我们称之为Bokoa jwa tlhaloganyo":塞茨瓦纳人的父母对自闭症谱系障碍的看法
Neo Jeanett Melamu1, Wandile Fundo Tsabedze2, Petro Erasmus1
1Department of Psychology, North-West University, Mmabatho, South Africa.
Frontiers in psychiatry
|September 19, 2024
概括
在塞茨瓦纳文化中,关于自闭症谱系障碍 (ASD) 的知识有限,导致误解和延迟诊断. 这项研究探讨了在这种文化背景下父母对自闭症的看法.
科学领域:
- 神经发育障碍 神经发育障碍
- 文化精神病学是一种精神病学.
- 公共卫生 公共卫生
背景情况:
- 南非缺乏有关自闭症谱系障碍 (ASD) 发生率和流行率的最新数据.
- 依赖世界卫生组织 (WHO) 全球自闭症率的国家自闭症数据是常见的.
- 了解文化视角对于有效的ASD支持至关重要.
研究的目的:
- 探索塞茨瓦纳文化中对自闭症谱系障碍 (ASD) 的文化理解和看法.
- 在接受世卫组织护理人员技能培训 (WHO-CST) 的人群中调查父母/护理人员对ASD的观点.
- 识别在纳卡莫迪里莫莱马区理解和管理ASD的文化障碍和促进者.
主要方法:
- 定性现象学研究设计. 定性现象学研究设计.
- 从12名WHO-CST接受者的6名参与者中有目的地采样样本.
- 通过半结构面试,音频录音和现场笔记收集数据.
主要成果:
- 出现了五个关键主题:理解自闭症,土著对ASD的看法,与ASD儿童的互动,创造支持的环境和ASD症状.
- 确定了塞斯瓦纳文化中关于自闭症的知识缺口.
- 揭示了迷信信仰影响ASD理解和诊断的存在.
结论:
- 缺乏文化知识和持久的迷信信仰导致塞茨瓦纳社区的自闭症诊断延迟.
- 建议对更大的样本大小进行进一步研究,包括多样化的利益相关者.
- 干预措施应考虑文化细微差别,以改善ASD护理和支持.
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