作为服务用户的残疾儿童父母的实践经验:一个变革性的学习理论视角
1Department of Social Work, Ben-Gurion University of the Negev.
The American journal of orthopsychiatry
|September 19, 2024
概括
残疾儿童的父母是服务的关键用户. 他们的生活经验和知识对于改善残疾人服务和政策至关重要.
科学领域:
- 关于残疾人的研究.
- 育儿研究研究 育儿研究
- 质量健康研究 质量健康研究
背景情况:
- 患有残疾儿童的父母往往需要在复杂的服务系统中进行导航.
- 作为主要护理人员的经验塑造了他们与支持服务的互动.
- 了解这些经验对于有效的服务提供至关重要.
研究的目的:
- 探索残疾儿童父母作为服务用户的实践经验.
- 在与残疾人服务的互动中确定关键主题和流程.
- 以父母的见解为基础,为服务设计和政策制定提供信息.
主要方法:
- 使用光声方法的定性方法.
- 采访24名家长 (19名自闭症,5名其他残疾) 的内容分析.
- 探索来自参与者生活经验的形成性经验.
主要成果:
- 出现了四个核心主题:与服务的互动,面临的挑战,扩大家长角色和政策变化.
- 父母强调了他们从生活经验中获得的独特知识的重要性.
- 调查结果强调需要承认父母是主要的服务用户.
结论:
- 残疾儿童的父母应该被承认并被视为主要服务用户.
- 提供残疾人服务的机构必须将父母的基于生活经验的知识纳入服务的设计和规划.
- 这种方法可以带来对家庭更有反应和更有效的支持系统.
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