[翻译文章] 在临床实践中评估亚托皮性皮肤炎的患者报告结果措施
Gabriel Mercadal-Orfila1, Carlos Seguí-Solanes2, Nuria Rudi-Sola2
1Servicio de Farmacia, Hospital Mateu Orfila, Mahón, Menorca, Spain; Departamento de Bioquímica y Biología Molecular, Universitat de les Illes Balears (UIB), Palma de Mallorca, Spain.
概括
患者报告的结果措施对于评估亚托皮性皮肤炎 (湿疹) 严重程度和影响至关重要. 这项研究建议使用皮肤病生活质量指数和面向患者的湿疹测量等特定工具来改善临床实践.
科学领域:
- 皮肤病学 皮肤病学
- 临床研究 临床研究
- 健康结果的健康结果.
背景情况:
- 亚托邦性皮肤炎 (湿疹) 是一种普遍的慢性皮肤疾病,影响全球数百万人.
- 由于严重的症状,这种疾病显著影响患者的生活质量.
- 缺乏评估湿疹严重程度的客观措施,强调需要患者报告的结果.
研究的目的:
- 讨论阿托皮性皮肤炎对患者生活的影响.
- 审查常用的患者报告的结果措施 (PROMs) 对亚托邦性皮炎.
- 根据专家建议和经验,为临床实践提出一套核心PROM.
主要方法:
- 审查现有文献和倡议 (例如,协调湿疹的结果措施).
- 对患者报告的结果措施进行分析,以评估亚托皮性皮肤炎.
- 在应用PROM用于疾病监测和治疗指南方面的临床经验.
主要成果:
- 患者报告的结果措施对于监测亚托皮炎进展和治疗疗效至关重要.
- 倡议为选择标准化结果措施提供了指导.
- 推的PROM包括皮肤病生活质量指数 (DLQI),面向患者的湿疹测量 (POEM) 和强度尺度 (NRS/VAS).
结论:
- 标准化的PROM对于在阿托皮性皮肤炎管理中以价值为基础的医疗保健至关重要.
- 通过远程医疗平台整合PROM电子管理可以改善其在临床实践中的系统使用.
- 拟议的核心措施旨在加强对亚托皮性皮肤炎影响和严重程度的评估.
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