与牛皮治疗升级相关的因素:电子健康记录数据分析
Jamie L W Rhoads1, William N Malatestinic2, Russel Burge2
1Department of Dermatology, University of Utah, Salt Lake City, UT, USA.
Journal of psoriasis and psoriatic arthritis
|September 20, 2024
概括
对牛皮的有意义的治疗升级与更严重的疾病和难以治疗的区域有关. 电子健康记录 (EHR) 有效地捕获用于医疗服务研究 (HSR) 的数据.
科学领域:
- 皮肤病学 皮肤病学
- 医疗保健服务研究 医疗服务研究
- 医疗信息学 医疗信息学
背景情况:
- 电子健康记录 (EHR) 可以捕获用于研究的离散临床数据.
- 牛皮的管理需要跟踪疾病的严重程度和治疗变化.
- 医疗服务研究 (HSR) 可以利用EHR数据获得真实世界的见解.
研究的目的:
- 在牛皮患者中确定与有意义的治疗升级 (MTE) 相关的因素.
- 试点使用EHR数据用于追溯HSR.
- 为了建立未来真实世界HSR皮肤病学研究的基础.
主要方法:
- 使用EHR数据进行回顾性,观察性队列研究.
- 用于收集有关牛皮严重程度和治疗的数据的EpiCare®智能表格.
- 分析与MTE相关的因素,定义为光疗,全身或生物疗法的变化.
主要成果:
- 分析了473名牛皮患者;239人接受了MTE.
- 患有MTE的患者在基线时有更高的疾病严重程度 (BSA,ppGA,oPGA,患者报告的措施).
- 与初始局部或无活性治疗相关的MTE,棕植物牛皮和难以治疗的区域.
结论:
- 作为离散元素在EHR中捕获的常规临床数据可以支持追溯HSR.
- 这种方法提供了一种具有成本效益的方法,用于在皮肤病学中进行真实世界的HSR.
- 在电子健康记录中独立捕获数据有助于研究治疗升级和患者结果.
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