患者的"控制"概念:一种定性研究
Itzel A Camarillo1, Sylwia Misiewicz2, Karolynn Siegel3
1Gertrude H. Sergievsky Center, Columbia University Irving Medical Center, 630 W. 168(th) St, New York, NY 10032, USA.
Epilepsy & behavior : E&B
|September 22, 2024
概括
患有的人 (PWE) 经历了严重的心理社会挑战超出了发作,包括焦虑和社会困难. 提高他们的控制感对于改善心理健康和整体福祉至关重要.
科学领域:
- 神经学 神经学
- 心理学 心理学 心理学
- 社会学 社会学 社会学
背景情况:
- 治疗传统上侧重于控制发作 (频率和严重程度).
- 的经历超越了身体症状,涵盖了心理社会方面.
- 了解患者定义控制对于整体护理至关重要.
研究的目的:
- 探索患者如何定义和感知控制.
- 调查自我管理和低感知控制的心理社会结果.
- 在的背景下分析疾病侵入性的概念.
主要方法:
- 对64名患有的成年人进行的采访进行了定性分析.
- 专题分析以确定控制和疾病侵入性的结构.
- 从2020年7月到2022年7月在纽约市的第三级推中心收集的数据.
主要成果:
- 疾病侵入性显著影响患者,超出了发作指标.
- 焦虑源于发作不可预测性和公开尬.
- 自主管理和社会挑战是经验的关键组成部分.
结论:
- 需要采用整体方法来改善患者的生活质量.
- 认识到更广泛的疾病侵入性可以提高对患者需求的理解.
- 干预措施应侧重于加强感知控制,以支持心理健康和福祉.
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