新生儿发作后的生活:描述长度父母经验的特征
Natalie K Field1, Linda S Franck2, Renée A Shellhaas3
1Duke University School of Medicine, Durham, North Carolina.
Pediatric neurology
|September 24, 2024
概括
照顾患有新生儿发作的孩子会给父母带来持续的情绪压力和日常生活的挑战. 然而,父母也喜欢结合,看着孩子成长,强调需要长期支持.
科学领域:
- 儿科神经学 儿科神经学
- 新生儿护理 新生儿护理
- 家长的心理健康
背景情况:
- 新生儿发作显著影响父母的心理健康,导致持续的抑郁,焦虑和PTSD.
- 了解长期的家长经验对于开发有效的支持系统至关重要.
研究的目的:
- 描述照顾新生儿发作儿童的父母多方面的经历.
- 对从婴儿期到幼儿时期的父母经历进行纵向评估.
主要方法:
- 这是一项前性,观察性,多中心的研究,涉及新生儿发作登记 (NSR).
- 父母在多个时间点完成了调查:出院,12,18,24个月和3,4,5,7,8岁.
- 320名护理人员的开放式调查答案的传统内容分析.
主要成果:
- 出现了三个主要主题:个人照顾负担 (情绪困扰,财务压力,恐惧),管理日常生活 (养育挑战,理解需求) 和父母的快乐 (结合,照顾,孩子的成长).
- 父母报告说,持续面临的挑战与父母的积极经历交织在一起.
结论:
- 患有新生儿的孩子的父母经历了长期的困难,伴随着父母的快乐.
- 未来的干预措施应侧重于促进性,解决纵向心理社会需求,并支持患有医疗复杂性的儿童的父母.
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