自我倡导者和家庭成员对支持决策的经验
Evan E Dean1, Mayumi Hagiwara1, Lashanna Brunson1
1Evan E. Dean, University of Kansas; Mayumi Hagiwara, San Francisco State University; and Lashanna Brunson, Brad Linnenkamp, Sean Swindler, and Karrie A. Shogren, University of Kansas.
Intellectual and developmental disabilities
|September 24, 2024
概括
支持决策 (SDM) 赋予智力和发育障碍 (IDD) 的个人权力. 患有IDD的成年人和他们的家人利用可信赖的支持者,技术和经验来提高决策能力.
科学领域:
- 关于残疾人的研究.
- 卫生政策 卫生政策
- 社会科学 社会科学 社会科学
背景情况:
- 支持决策 (SDM) 对于提高残疾人的自决能力至关重要.
- 政策和实践需要集中注意力来改善智力和发育障碍 (IDD) 的人的决策机会.
研究的目的:
- 了解IDD成年人如何利用决策支持.
- 探索家庭成员如何支持IDD个体的决策.
主要方法:
- 五个重点小组的内容分析.
- 包括27名患有IDD的成年人和16名家庭成员.
主要成果:
- 参与者描述了使用可信赖的支持者,技术和早期经验来建立决策能力.
- 患有IDD的个人和他们的家人都使用各种策略来促进决策.
结论:
- 调查结果可以为开发实践和政策提供信息,以加强SDM.
- 在研究,政策和实践中加强SDM对于IDD患者至关重要.
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