通过过渡性护理家庭成员经历的旅程,以危及生命的情况:定性研究
Theresa Gyllander1, Ulla Näppä1, Marie Häggström1
1Department of Health Sciences, Mid Sweden University, Ostersund, Sweden.
Scandinavian journal of caring sciences
|September 25, 2024
概括
陪伴重症患者的家人面临着艰难的生活过渡. 医疗保健系统必须在整个患者旅程中支持这些非正式护理人员,以改善健康.
科学领域:
- 医疗保健 医疗保健 医疗保健 医疗保健
- 定性研究是指质量研究.
- 家庭照顾 家庭照顾
背景情况:
- 一个家庭成员的严重疾病深深地影响了前景,并开始了苛刻的医疗保健旅程.
- 这一旅程往往包括住院,重症监护,后期护理和最终返回家园.
研究的目的:
- 描述家庭成员在整个医疗保健旅程中支持亲属的经历.
- 该研究涵盖了从最初的疾病发作到医院出院的时间.
主要方法:
- 使用半结构面试进行定性设计.
- 对14名有意抽样参与者的数据进行了反射性主题分析.
- 参与者有经验支持近亲通过重大疾病和康复.
主要成果:
- 家庭成员的经历以情绪动荡和非线性过渡为特征.
- 关键主题包括进入一个新的世界,导航未知的,并争取一个新的正常.
- 转型涉及家庭角色,医疗环境和患者状况的转变.
结论:
- 危急病患者的家人经历了艰难的过渡,特别是在非正式的护理者角色中.
- 医疗保健系统应优先考虑在整个患者旅程中为家庭成员提供高质量的支持.
- 需要进一步的研究来确定为家庭成员的过渡和福祉提供必要的支持.
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