与多种食物过敏的人一起生活和照顾他们:一项定性研究
Christina Ciaccio1, Jessica Dunne2, Andrea Bever2
1The University of Chicago, Chicago, IL, USA.
Patient preference and adherence
|September 25, 2024
概括
由于社会限制和压力,生活在多种食物过敏中显著影响生活质量 (QoL). 照顾者面临着管理食品过敏儿童的安全和日常活动的情感和实际挑战.
科学领域:
- 食物过敏研究 食物过敏研究
- 生活质量研究生活质量研究.
- 慢性疾病对心理的影响.
背景情况:
- 食物过敏会影响日常生活的反应,需要避免食物.
- 多种食物过敏可能会不成比例地影响生活质量 (QoL).
- 有限的研究存在于多种食物过敏的个体的经历.
研究的目的:
- 探索管理多种食物过敏的成年人,青少年,儿童和照顾者的生活经验.
- 了解多种食物过敏对生活质量的多方面的影响.
- 确定对受多种食物过敏影响的个人和家庭的关键挑战和应对策略.
主要方法:
- 在美国,对20名参与者 (10名成年人,5名青少年,5名护理人员) 进行了半结构化采访.
- 参与者有多种食物过敏.
- 使用反射性主题分析来识别采访数据中的模式.
主要成果:
- 患有多种食物过敏的个体报告说,自发性丧失,情绪影响变化,社会参与方面的挑战,以及超越营养的食物.
- 照顾者描述了儿童安全的情绪平衡行为,家庭活动的限制,以及创造安全环境的时间/成本.
- 关键主题包括准备,避免过敏原,社会限制,以及管理食物过敏的情绪负担.
结论:
- 多种食物过敏会给个人带来社会限制,压力和自由限制.
- 照顾者的生活质量受到儿童多种食物过敏管理的社会,情感和实际需求的重大影响.
- 这些发现强调了多种食物过敏对患者及其家人的综合性QOL影响.
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