患有多发性硬化症的人对残疾相关受害的感知脆弱性:关于风险和保护因素的社区调查
Leah A Munroe1, Donovan Rivera2, Aaron Flaster2
1From the Department of Social Work, Louisiana State University, Baton Rouge, LA.
International journal of MS care
|September 25, 2024
概括
使用辅助设备 (ADs) 的多发性硬化症患者认为受害风险更高,特别是种族/族裔少数群体. 这种感知到的脆弱性会影响社区参与和自我效能.
科学领域:
- 神经学 神经学
- 社会科学 社会科学 社会科学
- 公共卫生 公共卫生
背景情况:
- 被视为受害者的感知风险会对生活质量和社区参与产生负面影响.
- 种族,性别和辅助移动设备 (AD) 的使用与受害者风险有关.
- 对于患有多发性硬化症 (MS) 的人来说,这些交叉点的研究有限.
研究的目的:
- 调查患有多发性硬化症的人对人际受害感的风险和保护因素.
- 探索种族,性别和AD使用如何与感知受害风险相互作用.
- 了解感知风险对MS社区参与和自我有效性的影响.
主要方法:
- 从纵向调查中对446名多发性硬化症患者进行横截面分析.
- 自我报告的创伤暴露,弹性,自我效能,参与控制和受害风险的自我报告措施.
- 使用协差分析的统计分析,按种族/种族,性别和AD使用分层.
主要成果:
- 辅助移动设备 (AD) 的使用与受害者感知风险的增加显著相关,即使在控制创伤和损伤严重程度后.
- 来自使用AD的种族/少数民族群体的MS患者报告了最高的感知风险.
- 较高的感知风险与参与控制的减少,弹性降低和疾病管理自我有效性的降低相关.
结论:
- 可见的残疾指标,如ADs,可能会加剧脆弱感,特别是在MS的边缘种族/族群中.
- 临床医生应该考虑感知到的脆弱性如何影响社区参与,并教育患者关于AD使用的影响.
- 解决感知风险对于改善MS患者的生活质量和参与度至关重要.
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