电子健康研究是与我们人民一起进行的还是针对我们的? : 使用土著和托雷斯海峡岛民质量评估工具的经验教训
Andrew Goodman1, Georgina Chelberg2, Sheleigh Lawler3
1The Australian e-Health Research Centre, CSIRO, Brisbane, QLD, Australia.
Studies in health technology and informatics
|September 25, 2024
概括
对土著和托雷斯海峡岛民的文化安全电子健康干预需要土著的领导和世界观. 纳入土著知识的方式提高了电子健康研究的文化质量.
科学领域:
- 数字健康数字健康
- 土著健康研究土著健康研究
- 医疗信息学 医疗信息学
背景情况:
- 越来越多的证据支持对土著和托雷斯海峡岛民的电子健康干预措施.
- 对于文化安全,相关和可持续的电子健康计划的指导存在重大差距.
- 成立了一个研究计划,为这些人群创建电子健康的路线图.
研究的目的:
- 确定对原住民和托雷斯海峡岛民有效的电子健康干预措施的关键特征.
- 为制定文化上适当的电子健康战略提供信息.
- 解决在这个领域需要更好的指导的需求.
主要方法:
- 进行了全面的文献审查.
- 确定和分析了关于各种电子健康模式的39篇出版物.
- 使用原住民和托雷斯海峡岛民质量评估工具 (QAT) 来评估文化质量.
主要成果:
- 有更多土著作者参与的研究表明,QAT得分明显更高.
- 原住民的领导和世界观对电子健康研究的文化质量产生了积极的影响.
- 正在确定成功干预的关键特征.
结论:
- 原住民的认识,做事和存在方式对于文化上高质量的电子健康研究至关重要.
- 纳入土著领导层可以提高电子健康倡议的相关性和有效性.
- 这些发现支持在土著社区制定文化安全电子健康路线图.
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