使看不见的可见:慢性疾病如何改变叙事和自民族学视角
1Department of English and Linguistics, Purdue University Fort Wayne.
Health communication
|September 25, 2024
概括
自我民族学是一种有价值的健康研究方法,用于探索个人疾病经历. 这项研究揭示了由于复杂的内部视角,将自民族学应用于罕见的,看不见的慢性疾病的挑战.
科学领域:
- 卫生研究方法论 卫生研究方法论
- 质量调查 质量调查
- 叙事研究 叙事研究
背景情况:
- 自我民族学和叙事调查是健康研究中的既定方法.
- 这些定性方法促进了对个人疾病经验的探索.
- 研究人员有广泛的先前经验与自动民族学.
研究的目的:
- 在罕见的,看不见的,慢性疾病的背景下,研究自身民族学的应用和挑战.
- 在叙述内在身体体验时,探索EMIC (内部) 和ETIC (外部) 视角的复杂性.
- 重新评估研究人员对自身民族学方法的理解.
主要方法:
- 自动民族学作为主要的研究方法.
- 叙事调查,以组织个人经验.
- 对研究人员与罕见的,看不见的,慢性疾病的实践经验进行自我反思.
主要成果:
- 这项研究发现,将传统的自民族学应用到罕见的,看不见的,慢性疾病中存在重大挑战.
- 在描述内在,主观的身体感觉时,EMIC和ETIC视角之间的区别变得模糊.
- 这位研究人员以前对自身民族学的理解被生活经验深刻地挑战了.
结论:
- 在处理罕见和看不见的慢性疾病的复杂性时,自民族学需要适应.
- 为了有效地代表内部的主观健康体验,需要进一步的方法考虑.
- 这项研究强调了自我,疾病和叙事表现之间的复杂关系.
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