改善针对不同受众的多因素癌症风险评估结果的沟通:共同设计过程
Francisca Stutzin Donoso1, Tim Carver2, Lorenzo Ficorella2
1Department of Public Health and Primary Care, University of Cambridge, Cambridge, UK. fsd26@medschl.cam.ac.uk.
Journal of community genetics
|September 25, 2024
概括
一份新的CanRisk报告与患者和医疗保健专业人员共同设计,以提高对癌症风险的理解. 重新设计的报告加强了风险估计的沟通,支持临床环境中的共享决策.
科学领域:
- 在瘤学瘤学.
- 医疗信息学 医疗信息学
- 患者沟通 患者沟通
背景情况:
- 多因素癌症风险预测工具是医疗保健的组成部分.
- 有效地沟通癌症风险信息是一项挑战.
- 医疗保健专业人员依赖风险预测工具来传播结果.
研究的目的:
- 开发一个改进的CanRisk报告,以加强用户对关键信息的访问.
- 促进癌症风险估计的有效沟通.
- 支持癌症风险管理中的共享决策.
主要方法:
- 13个月的8步共同设计过程涉及患者,公众和医疗保健专业人员.
- 方法包括大声思考测试,结构化反和文献评论.
- 进行了一项新的报告原型的代开发和改进.
主要成果:
- 34个利益相关者的反表明,CanRisk最初的报告不适合患者和公众.
- 新的报告包括针对个人的摘要和针对医疗保健专业人员的详细部分.
- 通过解释性文本,定义,图表和表格提供了增强的解释性.
结论:
- 共同设计对于有效地传达复杂的健康信息是有价值的.
- 新的CanRisk报告可以改善癌症风险管理中的共享决策.
- 修订后的报告更适合跨临床环境的不同用户需求.
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