患者和公共合作伙伴对参与研究的观点
Birgitte Gade Jacobsen1, Lea Ladegaard Grønkjær2, Louise Locock3
1Department of Surgical Gastroenterology, University Hospital of Southern Denmark - Esbjerg Hospital.
Danish medical journal
|September 26, 2024
概括
在新的环境中,患者与公众参与 (PPI) 代表往往缺乏知识,但有动力合作. 有效的招聘和结构化的小组会议是成功研究PPI的关键.
科学领域:
- 医疗保健服务研究 医疗服务研究
- 患者和公众参与 (PPI)
背景情况:
- 对于患者和公众参与 (PPI) 经验的理解有限,存在于新研究合作的地区.
- 现有的PPI研究主要集中在成熟的环境中,留下了来自新兴环境的知识差距.
研究的目的:
- 探索PPI代表的知识,动机,期望和经验,在一个不太习惯PPI在研究中的环境中.
- 在研究设计和实施中确定有效的PPI的挑战和促进者.
主要方法:
- 使用半结构面试进行的定性研究,与参与重新设计临床研究患者材料的PPI合作伙伴进行半结构面试.
- 诱导性内容分析被用来编码,分类和解释采访数据成主题.
主要成果:
- PPI代表表明缺乏关于PPI在研究中的基本知识.
- 尽管有动力,但PPI合作伙伴在非专业人士的能力方面经历了焦虑和自我怀疑,以及对社会义务的感觉.
- 重复的,以小组为基础的会议提高了生产力,尽管注意到了诸如非主题讨论和怀疑之类的挑战.
结论:
- 调查结果为改进 PPI 流程和招聘策略提供了关键的见解,在启动 PPI 的地区.
- 强调在招募参与者时明确定义PPI概念的必要性,并利用结构化,重复性的小组会议来实现最佳参与.
相关概念视频
Ethics in Research
22.9K
Today, scientists agree that good research is ethical in nature and is guided by a basic respect for human dignity and safety. However, this has not always been the case. Modern researchers must demonstrate that the research they perform is ethically sound.
22.9K
Patient-centered Care
2.0K
Patient-centered care involves delivering care beyond inpatient hospitalization. Reflective practice can enhance a patient-centered approach. Reflective practice is a process of reasoning that considers all aspects of the present situation, including practicalities, learning from personal practice, and consideration of patient needs. Patients appreciate care decisions made while considering their input. Involving the patient in their care provides the patient with a sense of contribution rather...
2.0K
Ethical Standards II
652
Ethical standards are the backbone of nursing practice, guiding nurses as they interact with patients, families, and colleagues. These standards are crucial for providing safe, empathetic care centered on the patient's needs.
Nurses are entrusted with upholding various ethical principles and standards. Nurses forge solid therapeutic relationships using trust, empathy, autonomy, confidentiality, and professional competence.
Confidentiality is crucial, embodying respect for individual privacy...
Nurses are entrusted with upholding various ethical principles and standards. Nurses forge solid therapeutic relationships using trust, empathy, autonomy, confidentiality, and professional competence.
Confidentiality is crucial, embodying respect for individual privacy...
652
Nursing Ethical Principles II
932
Ethical principles are essential in guiding nurses to fulfill their responsibilities, focusing on the quality of nursing care and decision-making. These principles, including autonomy, beneficence, non-maleficence, justice, and fidelity, shape the ethical framework within healthcare settings.
Consider the following scenario, which illustrates how these principles are applied in the care of Mr. John, a fifty-year-old teacher diagnosed with metastatic liver cancer.
Initially, Mr. John's...
Consider the following scenario, which illustrates how these principles are applied in the care of Mr. John, a fifty-year-old teacher diagnosed with metastatic liver cancer.
Initially, Mr. John's...
932
Ethical Dilemmas II
957
Resolving an ethical dilemma in healthcare involves a systematic approach that considers every aspect of the issue, respecting both the patient's needs and values and the healthcare professional's ethical obligations. Here are potential steps to resolve an ethical dilemma:
957
Nurses' Legal Responsibilities II
687
Establishing a secure, collaborative nurse-patient relationship is crucial for delivering high-quality care. This relationship, founded on trust, respect, and honesty, enhances the patient's comfort and willingness to share vital health information. For example, a nurse who listens actively and without judgment provides clear information about health conditions and treatment options and respects patient decisions, which builds a trusting relationship.
Communication between nurses and...
Communication between nurses and...
687


