父母-年轻人生活经验的感官失调在儿童与动障碍:一个定性研究
Nicolette Soler1,2, Iain E Perkes1,3,4, Russell C Dale2,5,6
1Department of Psychological Medicine, The Sydney Children's Hospitals Network, Sydney, Australia.
Disability and rehabilitation
|September 26, 2024
概括
感官失调显著影响着儿童的日常生活和家庭福利. 目前的措施未能充分把握这些挑战的范围,强调需要更好的评估工具.
科学领域:
- 儿科神经学 儿科神经学
- 职业治疗是一种职业疗法.
- 心理学 心理学 心理学
背景情况:
- 的疾病除了运动症状之外,还存在复杂的挑战.
- 在神经发育条件下,越来越多地认识到感官处理差异.
研究的目的:
- 探索感官失调对患有滴答障碍的年轻人日常参与的广泛影响.
- 了解感官体验如何影响家庭生活和日常活动.
主要方法:
- 进行了18次半结构面试,对16个家庭的儿童 (5-16岁) 进行了半结构面试,这些儿童被诊断患有滴滴障碍.
- 在转录的采访数据上使用了感应和开放编码方法进行主题分析.
主要成果:
- 一个核心主题出现了:"感官,情绪和;这是一个定时炸弹.
- 副主题揭示了家庭为日常任务做出的牺牲,社区环境对参与的障碍,以及感官偏好对整个家庭的普遍影响.
结论:
- 感官失调严重影响家庭生活质量,但目前患者报告的措施不足.
- 一个专门的基于感官的评估工具对于有点儿的孩子来说至关重要,以准确地测量敏感性并指导有效的治疗.
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