分析黑人家庭提出的社区支持请求,这些黑人家庭养育自闭症儿童.
Jamie N Pearson1, DeVoshia L Mason Martin2, Jared H Stewart-Ginsburg2
1North Carolina State University, Campus Box 7801, Raleigh, NC, 27695, USA. jnpearso@ncsu.edu.
Journal of autism and developmental disorders
|September 26, 2024
概括
养育自闭症儿童的黑人家庭最常寻求社区组织的家庭,学校和行为支持. 农村地区,性别和年龄等人口统计因素影响了这些自闭症支持需求.
科学领域:
- 自闭症谱系障碍 (ASD) 研究研究
- 基于社区的支持系统.
- 在自闭症服务中的健康公平.
背景情况:
- 黑人家庭在获得自闭症支持方面面临独特的障碍.
- 社区组织可以弥合系统不平等造成的差距.
- 了解黑人家庭的具体支持需求至关重要.
研究的目的:
- 探索黑人家庭抚养自闭症儿童的自闭症相关支持需求.
- 分析社区自闭症组织内的沟通模式.
- 确定家庭人口统计学如何影响支持需求.
主要方法:
- 分析了来自社区自闭症组织的1,460个通信条目.
- 检查了支持请求类型的频率.
- 研究了请求和家庭人口统计数据 (乡村,性别,年龄) 之间的关系.
主要成果:
- 最常被要求的支持:家庭/个人,学校相关,行为支持.
- 不太频繁的请求:欺凌,社会服务,医疗保险.
- 在顶级支持类型和人口统计数据之间发现了显著的相互作用.
结论:
- 社区组织可以定制服务,以更好地支持黑人家庭.
- 解决人口差异是公平自闭症支持的关键.
- 结果为包容性自闭症服务提供提供策略提供信息.
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