囊性纤维化基金会立场论文:重新定义CF护理模式
D M Goetz1, R F Brown2, S S Filigno3
1Department of Pediatrics, Division of Pulmonology & Sleep Medicine, University at Buffalo School of Medicine, Buffalo, NY, USA.
概括
囊性纤维化 (CF) 护理模式正在随着新疗法和远程医疗而发展. 以患者为中心的护理,共享决策和强大的护理团队关系对于改善健康结果至关重要.
科学领域:
- 肺病学和呼吸系统医学
- 医疗保健服务研究 医疗服务研究
- 患者护理模式的模型
背景情况:
- 为患有囊性纤维化 (pwCF) 的人提供专业护理,通过CF基金会的认可网络提供.
- 这个网络标准化了护理,实施了指导方针,并促进了沟通和报告.
- 最近的进展,包括CFTR调节器疗法和由于COVID-19而采用远程医疗,需要重新评估护理模式.
研究的目的:
- 根据新的治疗选择和护理方法,重新评估当前的CF护理模式.
- 确定可能适应常规的临床实践,以改善患者的治疗结果.
- 强调以患者为中心的方法,并整合新兴的健康技术.
主要方法:
- 对常规临床实践组成部分的现有证据的审查.
- 确定需要密集监测的患者特征.
- 护理提供者,pwCF和护理人员之间的合作,以评估需求和潜在的修改.
主要成果:
- 新疗法改善了许多 pwCF 的健康状况,但并非所有.
- 远程医疗和远程监测越来越多地被纳入CF护理.
- 以患者为中心的护理,共享决策和强大的患者护理团队关系至关重要.
结论:
- 关节炎护理模式需要适应,以纳入新的疗法和技术.
- 以患者为中心,共享决策和综合远程医疗支持个人优先事项.
- 需要进一步的研究,以优化长期结果和最佳实践的老化 pwCF.
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