缺血的经验:一个解释性的现象学分析
Carolyn Blair1, Joanne Shields2, Robert Mullan3
1School of Nursing and Midwifery, Queen's University Belfast, MBC Building, 97 Lisburn Road, Belfast BT9 7BL, United Kingdom.
International journal of nursing studies advances
|September 27, 2024
概括
这项研究探讨了末期病患者及其护理人员的硬化,揭示了对心理社会支持和更好的医疗保健专业教育的重大需求. 研究结果强调食欲丧失,功能下降和情绪压力是关键挑战.
科学领域:
- 腎臟病學 (nephrology) 是一種醫學專業.
- 质量健康研究 质量健康研究
- 患者体验 患者体验
背景情况:
- 慢性病 (CKD) 影响全球13%的人口,末期病 (ESKD) 导致诸如蛋白质能量浪费和缓冲症等并发症.
- 在ESKD患者中出现的一种综合征脏缺血症 (renal cachexia) 是鲜为人知的,诊断不足,治疗选择有限,病人的预后恶化.
- 预计到2040年,CKD将成为"失去了生命年"的第五大原因,这凸显了解决其并发症的紧迫性.
研究的目的:
- 探索患有末期病的个体体硬化的经历.
- 为了调查护理人员支持硬性病患者的相互相关的经验.
- 为了深入了解患者和护理人员如何应对硬性的挑战.
主要方法:
- 解释性现象学研究的设计,以促进深入的探索.
- 针对七名参与者 (四名患者,三名护理人员) 在两个英国医疗信托机构的有目的抽样.
- 在2022年7月至2023年12月期间进行的半结构面试,使用解释性现象学分析进行分析.
主要成果:
- 六个体验性主题出现了:食欲丧失,功能下降,体重减轻作为一种关注,社会退缩,饮食挑战的情感损失以及由于缺乏信息而造成的心理压力.
- 患者和护理人员经历了与硬性相关的显著的心理社会困扰和脆弱性.
- 减肥被认为是疾病严重程度的视觉指标.
结论:
- 这是第一个探索患者和护理人员对硬化现实经验的定性研究.
- 对于患有硬性症的患者和照顾者来说,心理社会和教育支持是至关重要的.
- 医疗保健专业人员需要更好的信息来识别和解决这个弱势群体的需求,需要进一步研究整体支持模型.
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