体现的痛苦:揭示严重牛皮患者的疾病经验
Lin-Lin Lee1, An-Ping Huo2, Shu-Ling Chen1
1Department of Nursing, Hungkuang University, Taichung, Taiwan.
Scandinavian journal of caring sciences
|September 27, 2024
概括
严重的牛皮会导致严重的痛苦,影响身体,心理和社会福祉. 患有牛皮的患者由于可见的皮肤病变和相关的耻辱感,忍受着比死亡更糟糕的生活.
科学领域:
- 皮肤病学 皮肤病学
- 心理学 心理学 心理学
- 社会学 社会学 社会学
背景情况:
- 牛皮的可见性会导致严重的社会,情感和心理困扰.
- 自尊受到负面影响,导致慢性精神健康问题和生活困难.
- 严重的牛皮会给个人的生活带来很大的负担.
研究的目的:
- 探索严重牛皮患者的长期生活经验.
- 了解患有严重牛皮的多面性.
主要方法:
- 质量研究涉及20名患有严重牛皮的患者 (PASI ≥12).
- 通过60-90分钟的采访收集的数据.
- 用于数据解释的内容分析.
主要成果:
- 一个核心主题是"嵌入痛苦 - - 比死亡更糟糕的生活"出现了.
- 确定了三个相互关联的子主题:身体的痛苦,心理的痛苦和痛苦的耻辱.
- 患者经历了一种整体而深刻的痛苦.
结论:
- 严重的牛皮需要一个整体的经历的痛苦.
- 医疗保健专业人员必须考虑患者的全部情况.
- 解决多方面的痛苦对于有效的患者护理至关重要.
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