设计数据共享:在数据管理和传播方面考虑促进健康公平
Borsika A Rabin1,2, Justin D Smith3,4, Emily V Dressler5
1Herbert Wertheim School of Public Health and Human Longevity Science, University of California San Diego, La Jolla, CA, USA.
Translational behavioral medicine
|September 27, 2024
概括
在研究中公平的数据共享需要包括多样化的观点,并在整个项目中吸引合作伙伴. 这一框架促进公平的数据获取,为所有利益相关者带来好处,提高公共卫生成果.
科学领域:
- 实施科学 实施科学
- 公共卫生研究 公共卫生研究
- 社会和行为健康 社会和行为健康
背景情况:
- 数据共享加速了创新和公共卫生方面的进步.
- 公平的数据共享对于健康公平至关重要.
- 实施科学研究需要对数据共享作出具体考虑.
研究的目的:
- 确定和讨论设计在研究中的公平数据共享的因素.
- 制定一个公平的数据共享框架,强调实施科学和健康公平.
- 实现包容性数据共享流程的关键考虑.
主要方法:
- 召集了包括科学家,从业者和社区合作伙伴在内的各种专家.
- 进行了三次互动研讨会 (2022年5月至6月).
- 确定并运行了公平数据共享的七个关键考虑因素.
主要成果:
- 制定了一个公平的数据共享框架,将其定义为一个包容性的过程.
- 卫生公平的关键组成部分包括提高数据共享,多样化的观点和合作伙伴参与.
- 考虑因素包括道德,历史和所有参与或受影响的合作伙伴的利益.
结论:
- 公平的数据共享必须成为核心研究活动.
- 在整个项目生命周期中,各种合作伙伴的有意义的参与至关重要.
- 持续考虑对不同受益人的积极和不利影响至关重要.
更多相关视频
11:18Generation of Comprehensive Thoracic Oncology Database - Tool for Translational Research
Published on: January 22, 2011
16.0K
06:55Inverse Probability of Treatment Weighting Propensity Score using the Military Health System Data Repository and National Death Index
Published on: January 8, 2020
14.4K
相关概念视频
Ethical Standards I
783
The American Nurses Association (ANA) created and implemented the first nationally accepted Code of Ethics for Nurses with Interpretive Statements. The Code of Ethics is a living document regularly updated by the ANA and establishes an ethical standard that is non-negotiable for nurses in all roles and settings.
The Code of Ethics provisions outline the nurse's duty to the patient, the healthcare team, the profession, and society. The Code's fundamental principles include advocacy,...
The Code of Ethics provisions outline the nurse's duty to the patient, the healthcare team, the profession, and society. The Code's fundamental principles include advocacy,...
783
Principles of Disease Surveillance
72
Disease surveillance is the systematic collection, analysis, and interpretation of health data essential to the planning, implementation, and evaluation of public health practice. This process integrates data dissemination to entities responsible for preventing and controlling disease, injury, and disability. Surveillance systems provide crucial information for action, helping public health authorities make informed decisions to manage and prevent outbreaks, ensure public safety, optimize...
72
Ethical Standards II
652
Ethical standards are the backbone of nursing practice, guiding nurses as they interact with patients, families, and colleagues. These standards are crucial for providing safe, empathetic care centered on the patient's needs.
Nurses are entrusted with upholding various ethical principles and standards. Nurses forge solid therapeutic relationships using trust, empathy, autonomy, confidentiality, and professional competence.
Confidentiality is crucial, embodying respect for individual privacy...
Nurses are entrusted with upholding various ethical principles and standards. Nurses forge solid therapeutic relationships using trust, empathy, autonomy, confidentiality, and professional competence.
Confidentiality is crucial, embodying respect for individual privacy...
652
Issues And Trends In Healthcare Delivery System
5.6K
The issues and trends in healthcare delivery are constantly changing. The COVID-19 pandemic is one recent issue that wreaked havoc on healthcare systems, causing a shortage of healthcare workers, high demand for medicines and supplies, and increased medical expenditure due to a lack of insurance. Other issues include rising healthcare costs and care fragmentation.
Cost Containment
Payment for healthcare services has historically promoted adoption of costly and often unnecessary or inefficient...
Cost Containment
Payment for healthcare services has historically promoted adoption of costly and often unnecessary or inefficient...
5.6K
Purpose of Health Records I
1.2K
The vital purpose of health records is to provide a complete and accurate account of a patient's medical history, including communication, diagnostic and therapeutic orders, care planning, research, and quality review.
Here's a breakdown of how health records serve these purposes:
Here's a breakdown of how health records serve these purposes:
1.2K
Bias in Epidemiological Studies
167
Biases can arise at various stages of research, from study design and data collection to analysis and interpretation. Recognizing and addressing these biases is essential to ensure the validity and reliability of epidemiological findings.Broadly speaking, biases in epidemiology fall into three main categories: selection bias, information bias, and confounding. A more detailed description of possible biases is:
167
