饮食对肠功能和腹部症状的影响 患有赫斯普朗格病的儿童和青少年 - - 一项跨国患者报告结果调查
Judith Lindert1,2, Hannah Day2, Marta de Andres Crespo1,3
1Department of Paediatric Surgery, University Rostock, Ernst-Heydemann-Str. 8, 18057 Rostock, Germany.
饮食对赫施普朗格病 (HD) 患者的胃肠道症状有显著影响. 识别触发性食物对于控制症状和改善HD儿童生活质量至关重要.
科学领域:
- 儿科胃肠病学 儿科胃肠病学
- 营养科学 营养科学
- 临床研究 临床研究
背景情况:
- 赫施普朗格病 (Hirschsprung disease,简称HD) 是一种先天性疾病,会影响大肠,经常导致慢性胃肠道问题.
- 饮食管理是对患有HD患者的支持性护理的关键方面,但特定的食物对象的影响尚未得到充分记录.
研究的目的:
- 为了研究特定的饮食成分与赫施普朗格病患者的胃肠道症状之间的关联.
- 了解多国性HD队列中患者报告的饮食和肠道功能的结果.
主要方法:
- 一个跨国在线问卷被分发给父母和患有HD的患者.
- 收集的数据包括人口统计,疾病程度,饮食习惯,以及食物对肠道功能的感知影响.
- 分析了563个回复,以确定趋势和关联.
主要成果:
- 很大比例的HD患者 (77%) 确定了加剧他们的症状的特定食物,通常是自我识别的.
- 常见的触发性食物包括乳制品 (30%),水果 (39%),豆类 (54%) 和糖 (48%).
- 饮食习惯有所不同,其中24%的饮食中含有高纤维,18%的饮食中含有低纤维;31%的饮食中使用益生菌,特别是总结肠腺炎 (TCA) 病例中使用益生菌更高.
结论:
- 这项研究强调了某些饮食物品与希尔施普朗格病中胃肠道症状严重程度之间的明显联系.
- 研究结果强调,需要个性化的饮食策略和多学科的方法来优化HD患者的营养和生活质量.
- 进一步的研究可以完善饮食指导方针,以更好地管理症状并预防这一群体的营养不足.
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