关于为年轻发病痴呆症患者提供在线同行支持的最佳实践指南的制定
Esther Vera Loseto-Gerritzen1, Orii McDermott1, Martin Orrell1
1Institute of Mental Health, Mental Health and Clinical Neuroscience, School of Medicine, University of Nottingham, Nottingham NG7 2TU, UK.
Behavioral sciences (Basel, Switzerland)
|September 28, 2024
概括
这项研究制定了针对年轻发病痴呆症 (YOD) 的在线同行支持的最佳实践指南. 这些基于证据的指导方针有助于YOD患者,辅导员和医疗保健专业人员优化在线支持.
科学领域:
- 老年学是一门学科.
- 神经科学是一个神经科学.
- 公共卫生 公共卫生
背景情况:
- 年轻发病痴呆症 (YOD) 对个人及其支持网络提出了独特的挑战.
- 在线同行支持为YOD患者提供了一种有价值,可访问的连接和信息共享途径.
- 现有的支持结构可能无法充分满足YOD人口的特定需求.
研究的目的:
- 制定基于证据的最佳实践指南,针对年轻发病痴呆症 (YOD) 患者量身定制的在线同行支持.
- 为患有YOD的人,支持方便者和医疗保健专业人员创建一个全面的资源.
- 提高青少年社区在线同行支持的质量和可访问性.
主要方法:
- 系统的文献审查.
- 聚焦小组与YOD和专业人士的人.
- 在线调查和深度采访.
- 与利益关方进行商,包括有YOD的人和医疗保健提供者.
主要成果:
- 制定了一份两部分的最佳实践指南.
- 第1部分为YOD患者提供了有关如何参与在线同行支持的信息.
- 第二部分为促进者提供了指导方针,以优化YOD的在线同行支持.
结论:
- 开发的指南为YOD患者提供了基于证据的信息,并为辅导员和医疗保健专业人员提供了实用工具.
- 该指南旨在提高YOD患者在线同行支持的有效性和可访问性.
- 建议对这些指南在实践中的实施和可持续性进行进一步的研究.
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