向参与者返回个人研究结果:价值观,偏好和期望
Denise A Kent1,2, Michelle Villegas-Downs3, Marina Del Rios4
1Department of Biobehavioral Nursing Science, University of Illinois Chicago, Chicago, IL, USA.
Journal of clinical and translational science
|September 30, 2024
概括
大多数研究参与者希望收到他们个人的结果,这可以提高研究参与度. 虽然总体上是积极的,但一些参与者经历了焦虑,强调需要谨慎的结果交付策略.
科学领域:
- 临床研究 临床研究
- 参与者的参与参与参与者的参与
- 健康结果的健康结果.
背景情况:
- 将个别研究结果返还给参与者并不是标准的做法.
- 这种做法可以提高参与者的招聘,留住和研究研究的整体参与度.
研究的目的:
- 调查研究参与者的偏好,期望和经验,研究对接收个人研究结果.
主要方法:
- 采用混合方法方法,将半结构面试和健康素养评估结合起来.
- 参与者被纳入一项队列研究,并对面试数据进行主题分析.
- 描述性分析比较了参与者的反应,以确定共同点和差异.
主要成果:
- 98%的参与者希望自己的个人研究结果.
- 电子病历 (EMR) 是大多数英语发言者的首选交付方式,而西班牙语发言者和健康素养较低的人更喜欢亲自或电话交付.
- 三分之二的人报告了积极的经历,但22%的人经历了焦虑;75%的人与医疗保健提供者分享了结果.
结论:
- 参与者重视获得个人研究成果,这可能会促进参与研究.
- 结果为开发最佳实践和政策提供了基础,以有效地返回个别研究结果.
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