有意义的患者和公众参与传播-嵌入在痴呆症研究中的联合制作
Susanne de Wolf-Linder1,2, Iris Kramer1, Martina Hersperger3,4
1School of Health Sciences, Institute of Nursing, ZHAW Zurich University of Applied Sciences, Winterthur, Zürich, Switzerland.
Frontiers in dementia
|October 1, 2024
概括
患者与公众参与与参与 (PPIE) 共同创建了一项痴呆症研究传播战略,强调定制材料和协作方法,以有效地转化知识和产生社会影响.
科学领域:
- 老年学是一门学科.
- 公共卫生 公共卫生
- 医疗保健服务研究 医疗服务研究
背景情况:
- 患者和公众参与和参与 (PPIE) 在痴呆症研究和传播中未得到充分利用.
- 有效的传播策略对于将研究转化为实践至关重要.
研究的目的:
- 描述在共同创建痴呆症护理研究传播战略时的方法,格式和经验教训.
- 在常规社区息护理中建立以患者为中心的结果措施,用于痴呆症患者 (PLWD) 和非正式照顾者.
主要方法:
- 与PPIE小组一起举行了参与式的混合研讨会,共同创建传播策略.
- 对研讨会记录和研讨会后调查答案进行了定性主题分析.
- 使用视频演示和提示来引起参与者对传播和知识翻译的看法.
主要成果:
- 22名参与者参加了研讨会,产生了两个关键主题:知识翻译和协作传播.
- 参与者建议改变传播方法和材料,强调客户量身定制.
- 共同创建的传播活动涵盖了所有研究阶段,整合了PPIE成员的投入.
结论:
- 通知公众和政策制定者关于PLWD需求需要强大的知识翻译.
- PPIE对于开发有效,定制的传播策略至关重要,这些策略可以推动痴呆症护理的社会变革.
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