患者在死亡后对社交媒体账户管理的考虑
Rida Khan1, Jacqueline Tschanz2, Maxine De La Cruz2
1Department of Palliative Care, Rehabilitation, and Integrative Medicine, The University of Texas MD Anderson Cancer Center, 1515 Holcombe Blvd, Unit 1414, Houston, TX, 77030, USA. RKhan6@mdanderson.org.
概括
很少有晚期癌症患者在死亡后讨论社交媒体账户管理. 然而,完成一项调查激励了许多人考虑他们的数字遗产和在线应对策略.
科学领域:
- 在瘤学瘤学.
- 数字健康数字健康
- 抚慰性护理是一种缓解性护理.
背景情况:
- 社交媒体普遍存在,但死后账户管理仍未得到充分研究.
- 患有晚期癌症的患者在数字足迹方面面临着独特的挑战.
研究的目的:
- 确定已讨论过死后社交媒体管理的晚期癌症患者的比例.
- 探索患者对社交媒体作为数字遗产和应对机制的态度.
主要方法:
- 对晚期癌症患者进行的横截面调查.
- 调查评估了社交媒体的使用,态度,偏好以及死后管理讨论.
- 参与者来自第三级癌症中心的一家门诊支持性护理诊所.
主要成果:
- 在117名患者中,只有21%的患者讨论过死后的社交媒体管理.
- 年收入较低与这些讨论的可能性更高有关.
- 完成调查促使67%的人讨论账户,71.3%的人探索管理选项.
- 一半的参与者发现社交媒体是一个重要的应对来源.
结论:
- 在晚期癌症患者的死后社交媒体讨论中存在很大的差距.
- 患者对通过社交媒体探索数字遗产和应对策略表现出兴趣.
- 需要进一步研究社交媒体在数字遗产中的作用,以及对晚期癌症患者的应对.
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