青少年和家庭对诊断的看法 关于儿科功能性发作的沟通:一种定性研究
Himadri Patel1, Ryan Malave1, Sydney Bitting2
1Division of Child Neurology, UPMC Children's Hospital of Pittsburgh, Pittsburgh, Pennsylvania.
Pediatric neurology
|October 1, 2024
概括
青少年和家长希望在接受功能性发作诊断时有明确的沟通和实际指导. 解决恐惧和改善医疗保健提供者的沟通方式是获得更好的支持和教育的关键.
科学领域:
- 儿科神经学 儿科神经学
- 在医疗保健领域的沟通
- 以患者为中心的护理
背景情况:
- 功能性发作 (FS) 诊断 青少年及其父母的沟通经验和偏好尚未得到充分理解.
- 了解这些经验对于改善患者护理和支持至关重要.
研究的目的:
- 探索功能性发作的青少年及其父母在诊断期间的沟通经验和偏好.
- 从青少年和家长的角度确定有效和无效沟通的关键要素.
主要方法:
- 半结构面试分别与13名青少年 (年龄12-18岁) 和13名父母在第三级护理儿童医院进行.
- 两名编码人员对专业转录的采访录音进行了主题分析.
主要成果:
- 青少年和家长都对症状,诊断,预后和治疗表达了严重的恐惧.
- 有效的沟通需要放心,积极倾听,以及足够的时间来回答问题,尽管人们对沟通方式的偏好有所不同.
- 不有效的沟通包括医学术语,简洁性,症状最小化,缺乏同情心和书面材料不足.
- 参与者希望有具体的治疗计划,包括获得行为疗法,并为学校和其他环境提供实际指导.
- 关于心理健康在FS中的作用的观点各不相同.
结论:
- 青少年和家长提供了针对功能性发作优化诊断沟通的具体建议.
- 调查结果将指导教育干预措施的发展,以加强FS的青少年的沟通和支持.
- 改善沟通可以为年轻患者及其家人创造一个更为支持的环境.
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