在阿克拉大都市的基督教宗教领袖中,状细胞疾病的认识和感知:一种定性研究
Rebecca Okyere1, Menford Owusu Ampomah2, Gloria Achempim-Ansong3
1Faculty of Health and Allied Sciences, Department of Nursing and Midwifery, Pentecost University, Accra, Ghana.
Journal of community genetics
|October 2, 2024
概括
加纳的基督教宗教领袖对状细胞病 (SCD) 具有高度的认识,但有一些误解. 教育至关重要,使他们有能力支持患有SCD的个人.
科学领域:
- 遗传学和公共卫生
- 卫生社会学 卫生社会学
背景情况:
- 状细胞疾病 (SCD) 影响了加纳2%的新生儿,三分之一的新生儿携带状细胞基因.
- 基督教宗教领袖可以通过遗传咨询和查推广来影响SCD预防.
- 加纳这些领导人对SCD的认识和看法在很大程度上是未被探索的.
研究的目的:
- 探讨加纳基督教宗教领袖对状细胞病 (SCD) 的认识和看法.
- 在这个有影响力的群体中识别现有的知识,误解和对SCD的态度.
主要方法:
- 定性描述性研究设计.
- 针对加纳的16名基督教宗教领袖进行了有目的的抽样.
- 半结构面试和收集数据的专题分析.
主要成果:
- 观察到SCD作为遗传性疾病的高度意识.
- 误解将SCD与迷信,饮食和生活方式联系在一起是普遍存在的.
- 领导人认为SCD是负担和排水,影响SCD (PLWSCD) 患者及其家人.
结论:
- 对于基督教宗教领袖来说,对SCD的密集教育至关重要.
- 让宗教领袖参与可以提高公众对PLWSCD的认识和支持.
- 加强对PLWSCD和家庭的管理和社会支持系统需要多方利益相关者的合作.
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