直接向消费者进行健康基因检测时的遗传决定主义类型
Asia Friedman1, Tammy L Anderson1
1Department of Sociology and Criminal Justice, University of Delaware, USA.
Social science & medicine (1982)
|October 3, 2024
概括
直接向消费者 (DTC) 遗传测试显示,遗传决定性是常见的,以保护性,激励性和绝对性等形式出现. 了解这些解释,包括负面结果,对于公众对遗传健康信息的参与至关重要.
科学领域:
- 健康和疾病的社会学
- 遗传学与公共政策
- 科学传播科学传播
背景情况:
- 此前关于遗传决定性的研究早于直接向消费者 (DTC) 遗传测试.
- 批评是基于临床遗传测试背景,通常与症状或家族病史有关.
- 现在,公众与遗传健康信息的接触经常发生在临床环境之外.
研究的目的:
- 在DTC遗传健康测试的背景下重新审视遗传决定性.
- 探索个人如何解释他们的DTC遗传测试结果.
- 分析DTC测试对象中遗传决定主义的细微差别.
主要方法:
- 对39个人如何理解DTC遗传健康测试结果的定性分析.
- 检查对积极和消极遗传健康发现的解释.
- 专注于在医疗指导之外对遗传信息的平凡理解.
主要成果:
- 遗传决定论是DTC遗传测试者中一个突出的概念.
- 确定主义表现出不同的形式:保护性,激励性和绝对性.
- 负面结果 (没有高风险) 通常被解释为需要进一步研究.
结论:
- 遗传决定论不是一个单一的概念,其表达方式各不相同.
- 对于使用DTC遗传测试的人来说,遗传决定论仍然很重要.
- 需要进一步研究公众对遗传检测结果的消极解释.
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