对患有唐氏综合征的幼儿进行早期社交沟通干预的评估 (ASCEND):来自可行性随机对照试验的结果
Vesna Stojanovik1, Emma Pagnamenta2, Sarah Sampson2
1University of Reading, Reading, UK. v.stojanovik@reading.ac.uk.
Pilot and feasibility studies
|October 5, 2024
概括
一项由父母为患有唐氏综合征的幼儿进行的社会沟通干预,显示出有前途的可行性. 这种早期干预对家长和治疗师来说是可以接受的,支持全面试验以改善语言技能.
科学领域:
- 发育儿科 发育儿科
- 语音和语言治疗治疗
- 临床试验 临床试验
背景情况:
- 早期干预对患有唐氏综合征的儿童至关重要,以提高他们在上学前的语言技能.
- 该ASCEND干预旨在针对唐氏综合征的幼儿进行社交沟通,特别是共同关注.
- 评估了通过国家卫生服务 (NHS) 语音和语言治疗 (SaLT) 服务提供这种干预的可行性.
研究的目的:
- 为了确定ASCEND干预的全面试验的可行性.
- 评估父母为患有唐氏综合征的儿童提供社交沟通干预措施的可接受性和有效性.
- 在NHS SaLT服务中为未来的大规模随机对照试验 (RCT) 提供信息.
主要方法:
- 一个双臂可行性随机对照试验 (RCT) 与1:1分配.
- 在3个NHS SaLT服务中招募19名患有唐氏综合征的儿童 (11岁-36个月).
- 语言,社交沟通,适应性行为,生活质量和父母心理健康的评估,以及招聘,保留和忠诚等可行性指标.
主要成果:
- 这项干预措施受到家长和语音语言治疗师 (SaLT) 的积极欢迎,这表明接受度很高.
- 观察到高治疗效率,100%的家长日记返回和完成,100%的坚持电话完成.
- 可接受的保留率 (84%) 和初步数据表明成本低,支持干预的可行性.
结论:
- 基于招聘,保留和忠诚度的全面试验,ASCEND干预是可行的.
- 干预对父母和SaLTs的接受度支持其融入标准护理.
- 需要进一步的研究来证实这项干预措施在改善唐氏综合征儿童语言技能方面的有效性.
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