父母对社区和专业人士对自闭症的态度的看法
Natalie Thayer1, Christina Marsack-Topolewski2, Kaitlyn Wilson3
1Speech-language Pathology and Audiology, Towson University, Towson, MD, USA. nataliethayer.slp@gmail.com.
Journal of autism and developmental disorders
|October 7, 2024
概括
抚养自闭症儿童的父母报告说,他们的职业和社区态度是混合的,负面经历更为常见. 这凸显了对自闭症患者及其家属的更好的支持和理解的需要.
科学领域:
- 发展心理学 发展心理学
- 社会心理学 社会心理学
- 关于残疾人的研究.
背景情况:
- 自闭症谱系障碍 (ASD) 患者的育儿经历从出生到成年期.
- 了解社会态度对于为自闭症患者及其家人开发有效的支持系统至关重要.
研究的目的:
- 检查家长对自闭症的专业和社区态度的看法.
- 探索父母在一生中抚养自闭症儿童的生活经验.
- 确定对未来对自闭症社区的支持和研究的影响.
主要方法:
- 定性,现象学的方法.
- 与51名成年自闭症儿童的父母进行一对一的采访.
- 采访数据的双重编码和分析以确定主题.
主要成果:
- 家长们报告了专业人士和社区成员的积极和消极态度.
- 主题包括专业合作,能力推定,自满和歧视.
- 社区主题涉及重视优势,适应差异,不容忍和偏见.
- 消极的态度更经常被父母回忆起.
结论:
- 专业人士和社区对自闭症的态度各不相同,负面看法更为普遍.
- 调查结果强调需要加强研究和培训,以促进更好的互动和支持自闭症患者及其家人.
- 提高社会和专业的理解对于自闭症社区的福祉至关重要.
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