慢性性发育不良的成年人的日常挑战和资源:质量调查
Aurora Ninfa1, Giulia Morandi1, Antonio Schindler2
1Department of Pathophysiology and Transplantation, University of Milan, Milan, Italy.
Dysphagia
|October 8, 2024
概括
慢性口腔喉功能障碍 (OD) 的日常挑战和资源影响身体,实践和社会生活. 了解这些因素是改善OD患者以人为中心的护理的关键.
科学领域:
- 医学研究 医学研究
- 患者护理 患者护理
- 生活质量研究 生命质量研究
背景情况:
- 慢性口腔喉乱症 (OD) 提出了在研究中经常被忽视的日常挑战.
- 对OD以人为中心的护理需要了解患者的经验.
研究的目的:
- 识别和解决慢性口腔喉功能障碍 (OD) 的日常挑战和资源.
- 调查OD管理的维度,以改善以患者为中心的护理.
主要方法:
- 与25名意大利成年慢性OD患者进行了半结构化采访.
- 修改框架分析方法,独立编码和协商协议.
主要成果:
- 参与者报告了身体,实践和社会挑战,近一半需要护理,面临医疗保健障碍.
- 资源包括应对策略,个人能力以及家庭和医疗保健服务的支持.
- 由于OD,几乎一半的人经历了生活观和意义的变化.
结论:
- 适应OD涉及挑战和资源动员在生活领域.
- 需要进行长度研究,以了解以患者为中心的OD护理的积极调整.
- 调查结果可以为医疗保健政策提供信息,以解决个人所感知的需求和挑战.
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