在沙特阿拉伯多发性硬化症患者中对社会耻辱的评估:一个横截面研究
Rami M Algahtani1, Mohammad O Abu Zahirah1, Zainab I Alsuni1
1From the Department of Medicine (Algahtani, Alfahmi, Kabli), Faculty of Medicine, Umm Al-Qura university, Internal Medicine Department (Abu Zahirah), King Faisal Hospital, Makkah, and from Faculty of Medicine (Alsuni), University of Jeddah, Jeddah Kingdom of Saudi Arabia.
Neurosciences (Riyadh, Saudi Arabia)
|October 8, 2024
概括
在沙特阿拉伯,对多发性硬化症 (MS) 的社会耻辱是显著的,特别是在北部地区和未婚患者中. 建议开展进一步的支持和宣传活动.
科学领域:
- 神经学 神经学
- 社会科学 社会科学 社会科学
- 公共卫生 公共卫生
背景情况:
- 多发性硬化症 (MS) 是一种慢性神经疾病,影响全球个人.
- 了解社会观念和耻辱感对于患者的福祉和医疗保健整合至关重要.
- 有限的研究存在于沙特阿拉伯与MS相关的社会耻辱.
研究的目的:
- 评估沙特阿拉伯多发性硬化症患者所经历的社会耻辱的流行和模式.
主要方法:
- 在沙特阿拉伯进行了一项描述性的,横截面的在线调查.
- 该调查针对多发性硬化症患者,并使用谷歌表单收集数据.
- 一个经过验证的RSS-MS尺度测量了社会耻辱,以及人口统计数据.
主要成果:
- 381名多发性硬化症患者完成了调查.
- 与东部地区 (17.3±7.2) 相比,在北部地区 (25.5±10.0) 观察到更高的社会耻辱.
- 未婚患者报告的耻辱性明显高于已婚患者 (21.0±8.3比18.9±8.0,p=.011).
结论:
- 对多发性硬化症患者的社会耻辱是沙特阿拉伯的一个值得注意的问题.
- 建议包括加强对MS患者的心理和社会支持.
- 建议提高公众对多发性硬化症的认识和志愿者活动.
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