患者和公众参与证据综合项目:参与参与的描述和反思
Katie Thomson1, Alex Todhunter-Brown2, Marian C Brady2
1Department of Occupational Therapy, Human Nutrition & Dietetics, Glasgow Caledonian University, Glasgow, UK. Katie.thomson@gcu.ac.uk.
经验丰富的人通过定义术语,选择结果和确定建议,显著改善了中风恢复研究. 学到的经验教训强调建立良好的关系,并为有效的患者和公众参与未来审查提供培训.
科学领域:
- 医疗保健服务研究 医疗服务研究
- 证据综合 证据综合
- 患者和公众参与和参与 (PPIE)
背景情况:
- 由NIHR资助的证据综合项目专注于对中风后感知障碍的干预措施.
- 这篇论文详细介绍了与中风相关的感知障碍有过体验的个人的贡献和影响.
- 确定了提高未来系统审查项目的关键教训.
研究的目的:
- 描述患者和公众参与和参与 (PPIE) 在证据综合项目中的过程和影响.
- 识别通过将有实践经验的人参与中风审查而获得的经验教训.
- 为未来在健康研究中的PPIE提供建议.
主要方法:
- 根据ACTIVE框架的指导,PPIE活动是在研究协议中规划的.
- 活动包括小组讨论,投票达成共识,反表以及在线会议.
- 一个经历经验小组 (五名成员:两名中风幸存者,三名护理人员) 成立.
主要成果:
- 生活体验小组积极影响了审查的关键方面,包括术语定义,结果选择和研究建议.
- 由于COVID-19大流行,大多数活动都在线进行过渡,包括六次在线会议和电子邮件通信.
- 挑战包括主题的复杂性和适应新的在线技术.
结论:
- 有效的PPIE要求参与者有机会建立关系并熟悉在线工具.
- 关于参与目的的明确沟通和及时反至关重要.
- 这些经验教训对于在未来的系统性审查中计划成功的PPIE至关重要.
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