系统性硬化症患者在COVID-19期间的工作变化和财务资源的充足性:一个硬化症患者中心干预网络研究
Claire Adams1,2, Elsa-Lynn Nassar1,3, Marie-Eve Carrier1
1Lady Davis Institute for Medical Research, Jewish General Hospital, Montreal, QC, Canada.
Journal of scleroderma and related disorders
|October 9, 2024
概括
在COVID-19大流行期间,系统性硬化症患者的就业状况和财务状况保持稳定. 推灵活的工作安排,以更好地支持这些患者在他们的就业.
科学领域:
- 类风湿病学 类风湿病学
- 职业健康 职业健康 职业健康
- 公共卫生 公共卫生
背景情况:
- 系统性硬化症 (SSc) 是一种慢性自身免疫性疾病,影响多个器官系统.
- 在全球范围内,COVID-19大流行严重改变了工作环境和金融稳定.
- 了解这些变化对像SSc患者这样的弱势群体的影响至关重要.
研究的目的:
- 在COVID-19大流行期间调查SSc患者在工作状态的变化.
- 评估这一群体的财务资源充足程度.
- 检查对工作要求的偏好与实际工作安排的偏好.
主要方法:
- 这是一项横截面研究,利用了来自硬皮肤病患者中心干预网络COVID-19队列的数据.
- 参与者在2022年8月份填写了关于工作状态,财务福祉 (使用CFPB财务福祉量表) 和工作要求偏好的问卷.
- 分析了298名患有系统性硬化症的参与者的数据.
主要成果:
- 从2020年4月到2022年8月,工作状况和财务状况没有显著变化.
- 在工作的参与者中,偏好倾向于灵活或完全远程工作.
- 然而,大多数人被要求完全在现场工作或以混合,固定时间安排工作.
结论:
- 在大流行期间,全身性硬化症患者的就业状况和财务状况基本没有受到影响.
- 实施灵活的工作政策可以更好地满足系统性硬化症患者的需求.
- 进一步研究为慢性病患者提供量身定制的工作支持是有必要的.
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