梅西身份:对多发性硬化症支持小组的民族学探索
1CUNY Kingsborough Community College, Brooklyn, NY, United States.
Qualitative research in medicine & healthcare
|October 9, 2024
概括
多发性硬化症 (MS) 支持小组通过提供对抗言论来赋予慢性疾病患者权力. 这些团体为重新定义身份和抵制主流医学话语提供了一个至关重要的空间,促进自我发展和赋权.
科学领域:
- 健康和疾病的社会学
- 医学人类学 医学人类学
- 关于残疾人的研究.
背景情况:
- 患有多发性硬化症 (MS) 等慢性疾病的个人经常遇到主导的医学叙述.
- 获得替代观点或反叙述对于管理慢性疾病和残疾至关重要.
- 支持小组可以作为分享经验和开发应对机制的重要组织结构.
研究的目的:
- 探索制药公司代表和医生的主导医学叙述如何影响多发性硬化症支持小组参与者的沟通和自我认知.
- 了解支持小组在促进慢性疾病和残疾人士重新谈判身份方面的作用.
主要方法:
- 一个多发性硬化症支持小组的民族学研究.
- 在小组环境中分析沟通模式和叙事构建.
主要成果:
- 支持小组的参与为与会者提供了一个讨论沟通力量,塑造他们与MS的经验的空间.
- 组设置允许重新谈判身份,促进新的自我认知的发展.
- 在支持小组中出现了赋权的反叙述,挑战了主导的医学"主叙述".
结论:
- 支持小组对于患有慢性疾病和残疾的人来说至关重要,为开发反故事提供了一个平台.
- 这些团体促进身份重新谈判和创造赋权自我叙述.
- 获得支持性社区的机会是应对多发性硬化症和其他慢性疾病所带来的挑战的关键.
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