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裂唇和/或口腔:哥伦比亚儿童对耻辱的经历
Liliana Arias-Urueña1,2, Amy Chandler1,3, Jeni Harden1,2
1Centre of Research on Families and Relationships, The University of Edinburgh, Edinburgh, UK.
概括
患有裂唇/口腔 (CL/P) 的儿童经历了重大的社会耻辱,包括嘲笑和排斥,影响了他们的互动. 解决耻辱问题需要在多个层面进行干预,以改善社会福祉.
科学领域:
- 儿科心理学 儿科心理学
- 社会科学 社会科学 社会科学
- 面研究的研究.
背景情况:
- 面异常,如裂唇和/或 (CL/P),与负面社会经历的风险增加有关.
- 了解 stigma 的生活经验对于开发有针对性的支持至关重要.
研究的目的:
- 探索患有CL/P的儿童对耻辱的主观经验.
- 确定污名化如何影响他们的社会互动和福祉的具体方式.
主要方法:
- 在哥伦比亚,对12名患有CL/P的儿童 (6-12岁) 进行了定性采访.
- 创意活动和散步采访被用来促进在熟悉的环境中进行公开讨论.
- 以污名化和自我污名化理论为指导的专题分析,应用于采访成绩单.
主要成果:
- 孩子们报告说,他们经历了同龄人的标签,刻板印象和嘲笑,导致他们感到"被别人取代".
- 对裂相关差异的负面评价导致感知地位的丧失,参与者被视为"生病"或"不完美".
- 社会排斥,孤独,羞于说话,以及对负面互动的预期是显著的自我耻辱主题.
结论:
- 污名化和自我污名化对患有CL/P的儿童的社交互动产生了深刻而负面的影响.
- 医疗保健专业人员和政策制定者应实施多层次干预措施 (微,中,宏),以减轻耻辱的不良影响.
- 解决耻辱是改善儿童面状况的社会和情感结果的关键.
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