为患有慢性疾病的儿童和青少年提供患者导航计划
Rowena Lalji1,2,3, Lee Koh4, Anna Francis1,2,3
1The Centre for Kidney Research, The University of Queensland, Brisbane, Australia.
The Cochrane database of systematic reviews
|October 9, 2024
概括
目前的证据不足以支持为患有慢性疾病的儿童提供患者导航程序. 需要更多的研究来确定它们在改善生活质量和减少医疗保健利用方面的有效性.
科学领域:
- 儿科医疗保健 儿科医疗保健
- 慢性疾病管理 慢性疾病管理
- 医疗保健服务研究 医疗服务研究
背景情况:
- 全球儿童和青少年慢性病的增加,反映了成年人的趋势.
- 慢性疾病对儿童福祉,家庭和医疗保健系统产生重大影响.
- 传统的成年慢性护理模式不足以满足独特的儿科需求.
研究的目的:
- 系统地审查患者导航程序对患有慢性疾病的儿童和青少年的有效性.
- 评估患者导航员对生活质量和医疗保健利用的影响.
主要方法:
- 通过全面的数据库搜索识别的随机对照试验 (RCT) 的系统审查.
- 包括17个RCT与2895名参与者,将患者导航器与标准护理进行比较.
- 在研究持续时间和结果措施相似的情况下使用元分析;评估偏差风险和证据确定性.
主要成果:
- 关于患者导航器对生活质量 (儿童,父母,照顾者) 和医疗利用 (住院,急救诊所) 的影响的证据是非常不确定的,因为证据的确定性很低.
- 错过学校日的数据很少,由于异质性,对资源使用的元分析是不可能的.
- 所有纳入的研究都报告了患者导航臂的潜在成本节约或质量调整后生命年改善.
结论:
- 目前没有足够的证据支持儿童慢性疾病的患者导航程序.
- 现有证据的确定性很低,可能会随着进一步的研究而改变.
- 需要进一步进行高质量的研究,以确定患者导航员在这一群体中的有效性.
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