了解患有症状性静脉的儿科经验:在线静脉社区的混合方法研究
Grace E Sollender1, Tommy Jiang1,2, Ilana Finkelshtein1
1Department of Urology, University of California, Los Angeles, Los Angeles, CA, United States.
JMIR formative research
|October 10, 2024
概括
青少年男性在社交媒体上讨论诸如疼痛和美学等静脉的担忧,寻求同行支持以及医疗建议. 这凸显了医生需要了解这些独特的患者优先级,以获得更好的咨询.
科学领域:
- 泌尿器科 泌尿器科 泌尿器科 泌尿器科
- 青少年医学 青少年医学
- 社交媒体分析 社交媒体分析
背景情况:
- 静脉影响高达30%的青春期后男性青少年,由于敏感性而难以研究的人口统计.
- 社交媒体平台提供了一种独特的途径,以了解青少年对瘤的看法.
研究的目的:
- 通过使用社交媒体数据,识别青少年男性对静脉的看法和担忧.
- 为医疗保健提供者提供有关该群体更好的评估和咨询策略的信息.
主要方法:
- 一种混合方法的方法,结合了定量自然语言处理 (NLP) 和定性主题分析.
- 分析了来自Reddit社区"r/varicocele" (年龄≤21岁) 的1103条帖子.
- 使用的含义提取方法与主要组件分析 (MEM/PCA) 和常数比较方法.
主要成果:
- 关键主题包括瘤综述,管理,术后经验和寻求社区支持.
- 青少年对阴性腺体低位症和精液分析表示担忧.
- 症状性静脉是很常见的,疼痛,阴性双胞胎症症状和美学是主要关注点.
结论:
- 青少年使用社交媒体获得同行支持,并作为医疗咨询的辅助.
- 对青少年来说,症状控制,重点是疼痛,美学,性功能和阴性腺功能下降,是青少年的优先事项.
- 结果可以指导泌尿科医生在辅导和理解决策的治疗瘤管理.
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